About SAIVMs
Introduction
Contact details
Email us
Steering committee
Our supporters
This website
Protocol
Introduction
PDF file of protocol
Background
Objectives
Inclusion criteria
Exclusion criteria
Design
Approval of SAIVMs
Our collaborators
Introduction
Organised by city
Organised by hospital
Organised by specialty
Resources for collaborators
Introduction
Notification form
Publicity poster
Online notification
Web based imaging review
Resources for patients
Introduction
SAIVMs Information leaflet
Leaflets about IVMs
More information
Publications
Introduction
Audit reports
Research papers
Other reports
Related studies
Introduction
ARUBA
NYIAMS
UCSF
Toronto
Perth
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External Links
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NHS Scotland
»
NHS National Audits
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SAIVMs
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Resources for patients
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More information
Please click each link to open their website.
Information about arteriovenous malformations (AVMs)
AVM Support UK -- A website offering support and a discussion forum for patients with brain AVMs
Contact a Family -- Contact a Family is a UK charity providing support and advice to parents whatever the medical condition of their child. This page is their entry about arteriovenous malformations (AVMs) of the brain.
Vein of Galen Malformations -- A website promoting awareness of Vein Of Galen malformations and offering support and advice via the Parents Support Group
Aneurysm & AVM support group -- A support group providing information and a forum, based in Newcastle, Australia
Aneurysm and AVM support -- A web-based discussion forum for patients and their families, run from West Georgia, USA
Arteriovenous malformations -- A brief guide from the National Institute of Neurological Disorders and Stroke (NINDS) in the USA
Vascular malformation support group at Harvard
CyberKnife Patient Support Group -- A nonprofit organization in the USA dedicated to supporting people who have had stereotactic radiosurgery/radiotherapy
Information about cavernous malformations
Angioma Alliance -- Angioma Alliance is a non-profit North American all-volunteer organization dedicated to improving the lives of those affected by cavernous angioma of the brain and spine through education and support
Cavernoma Alliance UK -- This is the UK branch of the Angioma Alliance, which shares the same objectives as the USA Angioma Alliance, and organises an annual meeting
Information about stroke
The Stroke Association -- Caring for today, researching for tomorrow, working for change
Chest, Heart and Stroke Scotland -- CHSS is one of Scotland's leading medical charities.
Different Strokes -- A charity set up by younger stroke survivors, for younger stroke survivors
Information about epilepsy
Epilepsy Association of Scotland -- Working for people with epilepsy throughout Scotland
The National Society for Epilepsy -- Striving for a world without epilepsy
Information about neurological conditions
Brain and Spine Foundation -- A source of written information about a wide variety of conditions affecting the brain and spine, including vascular malformations of the brain.
Capability Scotland -- Capability Scotland is one of the leading Scottish disability organisations and has nearly 60 years experience of providing services to disabled people of all ages in Scotland.
MedInfo -- Medinfo is being developed with the aim of providing free and easy to understand medical information and advice
Healthfinder -- A guide to health information
Standards for web-based patient information
HON -- Health on the Net Foundation
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Tel/Fax: +44 (0)131 537 2944.
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